Storyteller Volunteer

Help others feel seen, understood and less alone by sharing your facial palsy journey.

About this opportunity

Every facial palsy journey is different. By sharing your experiences, you can help raise awareness, challenge misconceptions and provide encouragement to others who may be facing similar challenges.

At Facial Palsy UK, we believe lived experience has the power to inform, inspire and create change. Whether you have facial palsy yourself, support a loved one, or care for someone affected by the condition, your story could help others feel understood and supported.

This opportunity contributes directly to Facial Palsy UK's Inform objective by raising awareness and improving understanding of facial palsy. It also supports our Support objective by helping others feel connected to a community that understands their experiences.

Community Voice Volunteers may also work alongside Storyteller Volunteers, helping identify opportunities to share lived experiences and raise awareness.

How you could get involved

You might choose to:

• Share your story on the Facial Palsy UK website.

• Feature in a newsletter, blog, podcast or awareness campaign.

• Contribute to social media, videos or other digital content.

• Take part in media interviews or awareness activities, including Face Up, Speak Out! where appropriate.

• Share your experiences to help improve research, volunteer training, healthcare education or organisational learning.

• Help others better understand the realities of living with facial palsy and the difference support can make.

You can decide what you're comfortable sharing and how involved you'd like to be.

Who can take part?

We welcome people who:

• Have lived experience of facial palsy.

• Support or care for someone affected by facial palsy.

• Are willing to share their experiences to help others.

No previous experience is needed, and there is no ongoing commitment.

Practical information

Location: Flexible – opportunities can be completed remotely or in person depending on the activity.

Time commitment: One-off or occasional, depending on your availability and interests.

Support: The Facial Palsy UK team will work with you to ensure you feel comfortable and supported throughout the process.

A note on sharing your story

We understand that sharing personal experiences can feel daunting. You will always have control over what you choose to share, and we will discuss any media, campaign or publicity opportunities with you before they go ahead.