GOSH Voice- Great Ormond Street Hospital's coproduction community

 

Help us improve our Neurodisability survey questions and clinic posters

 

We want to hear from young people and parents

We are looking for feedback to help improve the questions we will ask in a survey and the posters we will use in our clinics.

This survey and posters will ask families what it was like to come to their appointment.

 

Who can take part in this project?

Patients and families who attend the Neurodisability clinics. If you’re not sure whether this includes you please check the list below, or ask your parent or carer.

 

What are Neurodisability clinics?

 

Neurodisability clinics support children and young people with conditions that affect how they move, communicate, learn, or take part in everyday activities.

 

Our clinics include:

 

• Augmentative Communication Service
• Developmental Communication Service
• Developmental Epilepsy Clinic
• Developmental Vision Clinic
• Dysphagia Clinic
• Movement Disorders Clinic
• Neurodevelopmental Assessment Clinic
• Neurometabolic Clinic
• Osteogenesis Imperfecta Service
• Selective Dorsal Rhizotomy Service
• Social Communication and Autism Spectrum Service
• Sturge-Weber and Neurocutaneous Syndromes Service

 

What is this project about?

 

We want to understand what appointments are like for young people and parents. To do this, we are using a short survey called the Experience of Service Questionnaire to gather feedback. We will be asking everyone who comes to a clinic in May to complete a questionnaire.

To help more families take part, we have created posters and flyers that will be displayed in the hospital and given out at clinics.

In this session we want to get feedback on the questions we will use for the survey as well as the posters, from patients and families who may see them.

 

What would we like your feedback on?

 

We’d love to hear what you think about the questions and posters, including:

• Are they easy to read and understand?
• Is there anything you would change to make them more helpful?

 

How can you get involved?

 

You are invited to take part in an online focus group where you can share your thoughts and give feedback on the questions and posters.

OR you can complete a short feedback survey that will take 5 – 10 minutes if you would prefer. 

 

Our aim is to make sure the questions and posters are helpful and accessible for everyone. We’d love to hear what would feel most meaningful or helpful to you.

 

Practical details

 

Where: Online

 

When:

• Tuesday 14 April
• 4–4.30pm or 5–5.30pm

You can choose the time that works best for you.

 

 

If you don’t feel comfortable speaking in a group, you can also share your thoughts through a short online survey, especially for young people.

 

The QR code and link for this survey is below:

 

 

Feedback Survey

 

Thank you for taking part

You will receive a certificate as a thank you for taking part. If you would like a certificate please share your name and address.

 

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I want to take part! How do I sign up?

 

Existing members

If you’re already a GOSH Voice member, great!

To register for this activity:

Step 1:  Make sure you are logged into your MyImpact account. If you’re not already signed in, you can sign in here.

Step 2: Click ‘Sign Up’ on this event!

 

New members

 

If you’re not already a GOSH Voice member, you first need to sign up to be a member of GOSH Voice.

 

Please click here or the 'Fill in an application' button to get started. 

 

We'll ask you a few questions to get to know more about you, and the type of projects you're interested in. Once we've approved your application you'll be able to sign up to the opportunities you'd like to take part in.

 

We try and approve all applications as quickly as we can. If you're under 16, we'll need your parent/carer to complete a consent form so we know they're happy for you to take part.

 

Once we have approved your application you will be able to log in, and sign up to this activity.

 

 

Questions? 

If you have any questions, or need help signing up, please email GOSHVoice@gosh.nhs.uk