Opportunities - Preparedness of Informal Caregivers of an Older Adult after a Stroke: Developing the Concept and an Intervention Program

Preparedness of Informal Caregivers of an Older Adult after a Stroke: Developing the Concept and an Intervention Program
University of Alberta

Background
Stroke is the leading cause of adult disability in Canada, especially in the older population. In Canada, 7.8M Canadians are family and friend caregivers (herein referred to as  “caregivers”) and provide care for older adults with a health condition such as a stroke. However, 94% of Canadian caregivers report they need better access to support, and 31% feel incapable of caring for a stroke-affected family member. Little is known about how to best support preparedness for caregivers of older adults after a stroke. This dissertation study will advance understanding of caregiver ‘preparedness’ and co-design an intervention to support preparedness for caregivers of older adults after a stroke.

To understand population perspectives, our methods will include: 1) consultation with an advisory group (2024-2026) that includes caregiver partners, health care professionals, and a representativefrom a caregiver organization. We will meet regularly to review the design of the intervention, support participant recruitment to test its acceptability, and engage in knowledge translation; and 2) a study to assess the perspectives of caregivers and healthcare providers of a person living with stroke about the intervention program to support the further development of interventions to advance the health and wellbeing of older adults after stroke and their caregivers.

Roles and Responsibilities
We are looking for individuals with lived-experience as caregivers for an older adult who has had a stroke to join our advisory committee to:
-Refine our research design and processes
-Review the design of the proposed intervention
-Co-develop participant recruitment strategies
-Collaborate on knowledge dissemination activities

Time Commitment
This project is anticipated to start July 2024 and will include virtual 1-hour meetings every two months from 2024 to 2025 for a total of 6 meetings.
The anticipated first meeting is July 2024.

Compensation/Reimbursement
Compensation is being offered at a rate of $25/hour for meeting time. This is an online opportunity so there are no anticipated travel and/or parking expenses.

For more information or to apply
Fernanda Dal Pizzol
fenglerd@ualberta.ca