Opportunities - Patient Engagement in the creation of patient education handouts in Obstetrical Medicine

Patient Engagement in the creation of patient education handouts in Obstetrical Medicine
Grey Nuns Hospital, Internal Medicine

Background
Pregnancy is a time of great joy, but there can also sometimes be anxiety. Studies have shown that increased knowledge and positive experience can happen when patients are provided with printed or audiovisual information regarding their health condition. Currently, there are many health conditions where no patient education materials exist. Those that do exist are often not appropriate or user-friendly so many health providers have begun creating their own patient hand-outs.  With this project we hope to create patient education materials that help patients better understand their illness while they are pregnant as well as explain some initial treatments that may be used.

We invite you to join us to review recent materials that have been developed on Asthma in Pregnancy  and Nausea and Vomiting of Pregnancy. We want to ensure they are easy-to-read, contain information that is meaningful and relevant to patients, and provide reassurance and/or guidance about potential treatments. We would also like to know how best to lay-out and provide these materials to patients.

Roles and Responsibilities
We are looking for patient partners to engage in a focus group to read through and discuss the two patient hand-outs that are currently being created - "Asthma in Pregnancy" and "Nausea and Vomiting of Pregnancy". Patient partners will be asked to provide feedback in terms of readability (suitable language, etc.) as well as ease of use. In addition, we will ask if these hand-outs answer the most common questions patients have on these topics or if there are key questions that are not addressed.

With your input, we can create patient education materials that help patients better understand their illness during pregnancy as well as initial treatments that can be used!

Time Commitment
This project will ideally be completed by November 30, 2019. One in-person meeting of 2-3 hours in Edmonton is anticipated plus potential follow-up via email surveys if major changes have been recommended. There is the possibility of teleconference or video conferencing links for rural or remote partners.

Reimbursement
Patient partners will be reimbursed for parking.  Refreshments will be provided for the focus group meeting.

Contact Information
Interested in providing feedback and informing the creation of these patient hand-outs?  Please connect with:

Gillian Ramsay
gramsay@ualberta.ca
780.462.3010

Thank-you for taking the time to consider this opportunity. If you know someone you think would be interested, please pass this posting along!