Opportunities - Discovering a Framework for Online Information Sharing With Those Living With Cancer: A Classical GroundedTheory Study Using Data Collected Through SemiStructured Interviews and Online Correspondence

Discovering a Framework for Online Information Sharing With Those Living With Cancer: A Classical GroundedTheory Study Using Data Collected Through SemiStructured Interviews and Online Correspondence

Faculty of Nursing/University of Calgary

 

Background

The internet is one of the most accessed sources of information for those living with cancer, including patients and their friends and family. Evidence-based frameworks, useful for guiding web content development for cancer patients and their friends and family, currently do not exist. This project aims to create a framework informed primarily by the lived experience of patients and their friends and family that can be used by web-content creators to create useful online content to help people navigate their cancer journey.

This study is being conducted primarily online. Participants will have the opportunity to contribute to the development of the framework through participating in an online discussion board, video conference focus groups, and one-on-one interviews and email correspondence with the researcher.

This study is open to all individuals over the age of 18 with firsthand experience of cancer, either as a patient or as someone who has supported a patient as a friend or family member.
While this study is being conducted primarily online, accomodations for those not able to participate in online format can be made (i.e. one-on-one telephone conversations with the researcher).  This study will continue from now until early 2022.

 

Roles and Responsibilities

This is a participant opportunity. Participants will be asked to contribute their perspectives and insights about their information needs, as well as their experiences using online information. Additionally they will be asked to provide feedback on the study findings as they emerge – including the framework for online content development as it emerges.

Participants can also be asked to provide feedback on the content and development of sample web content as part of the framework development process.

Participants can expect that study activities will be scheduled around their availability and that they can decline participating in a specific activity for any reason. They can also expect to be notified of the study results.

 

Time Commitment

Study activities are expected to continue until early 2022. All participants will be given access to the online discussion board and invited to provide feedback on topics/comments as is convenient to them throughout the course of the study.

The number of focus group/one-on-one interviews a participant will be invited to participate in will depend on the total recruited participants, but it is expected that a participant will not be asked to participate in more than 4 of these activities, which will take no more than 90 minutes.

 

Reimbursement/Compensation

This is an online opportunity. There are no travel or parking costs associated with participating.

This is a voluntary role. There is no compensation being offered.

 

For more information or to apply, please connect with:

Dr. Maclean Thiessen (Student)                                                                                            

maclean.thiessen@ucalgary.ca

204.782.1294

 

Or
Dr. Shane Sinclair (Supervisor)

sinclair@ucalgary.ca

403.220.2925