Opportunities - Evaluation of a website about Patient-Researcher Partnerships

Evaluation of a Website about Patient-Researcher Partnerships

University of Toronto & Trillium Health Partners

 

Project Background

Researchers from the University of Toronto and the Institute for Better Health at Trillium Health Partners are looking for patients, caregivers and researchers across Canada to help with the evaluation of a website about patient engagement in research. Your participation would be highly valued!

The project aims to get feedback about the helpfulness of a website about patient-researcher partnerships and to find out if spending time on the website influences interest in engaging  in patient-researcher partnerships. The project will increase understanding about how to create online resources about patient engagement in research that are helpful to website visitors and that increase engagement among both patients/caregivers and researchers.

We are looking for patients and caregivers (anyone with lived experience of illness and/or the health care system) and health researchers (includes clinical, biomedical, health services, and social/cultural/environmental/population researchers) who have experience with, or want to learn more about, patient engagement in health research.

Research Team: Donna Plett, Susan Law, Kerry Kuluski

 

Roles and Responsibilities

Involvement is entirely online and will include browsing a website and completing two online surveys.

Process:

  1. We will email you a link to the first survey, which will include questions about your thoughts about patient-researcher partnerships and your experience using the internet to learn more about these relationships. Previous experience with patient-researcher partnerships is not necessary.
  2. Once you have completed the survey, we will send you a link to the website.
  3. Over a period of one week we ask that you browse the website at your leisure. There is no time requirement for this, but we estimate 2-3 hours in total.
  4. At the end of the week, we will email you a link to the second, and final, survey where you will have the opportunity to provide general feedback about the website as well as your thoughts about patient-researcher partnerships in general.

 

Time Commitment

Approximately 2-3 hours in total, over a period of 1-2 weeks. There are no set meeting times and all activities can be completed online at times that are convenient for you.

 

Reimbursement/Compensation

This is a volunteer role. Participation in this research doesn’t require any travel and can be done at any location that has internet access.

 

Project Team Contact Information

If you are interested in getting involved or would like more information, please contact

Donna Plett                                                                            Susan Law

donna.plett@mail.utoronto.ca                                                 susan.law@thp.ca