Opportunities - Co-creating knowledge mobilization activities to address pregnancy-related near-miss events and deaths in Canada

Co-creating knowledge mobilization activities to address pregnancy-related near-miss events and deaths in Canada
Research Institute of the McGill University Health Centre

Background
A Hub addressing pregnancy-related serious complications and deaths to improve the health and wellness of pregnant persons in Canada has recently been funded by a Canadian Institutes of Health Research (CIHR) grant. The Hub aims to be a place for persons and families with lived experience of pregnancy (including serious complications), community partners, health care professionals, policy makers, and researchers to meaningfully interact and co-create knowledge mobilization activities to address pregnancy-related serious complications and deaths. The activities will include research priority setting activities, and the co-development of material to improve the quality of care and increase patient safety in pregnancy. Progress on activities will be shared within the community of the Hub and the general Public throughout the duration of the project. Taken together, these activities have the potential to improve the quality of care for all pregnant persons in Canada.

Roles and responsibilities

Co-building the Governance Structure
In a first phase, we are looking for patient partners to be involved in co-building the Governance Structure of the Hub between December 2023 and February 2024. This will include the co-development of Terms of References, Guidelines for Working Together, and Core Values for the Hub. 

The first phase will consist in two 1-hour small online gatherings to explore possibilities regarding patient and community engagement throughout the duration of the Hub, and a one-time 1.5 hour large online gathering to co-develop Guidelines for Working Together and Core Values for the Hub with all the Hub community. 

Advisory Sharing Circle
This Advisory Sharing Circle will oversee all the activities of the Hub throughout 2024-2027. The Advisory Sharing Circle will consist in 1.5 hour meeting taking place 3 times per year and occasional communications via email. Additional opportunities to contribute throughout the term are possible as the project moves forward. Collaboration will be on a 2-year term: either 2 years in a row, or alternating years.

We are looking for persons who are interested in being involved in either or both of these opportunities and welcome persons with lived experience of pregnancy from diverse backgrounds, including from racialized, immigrant, Indigenous, 2SLGBTQAI+ communities, and individuals residing in rural or lower income areas or living with disabilities, who are interested and available to collaborate and contribute to the activities of the Hub. 

Compensation/Reimbursement
Patient partners will be offered compensation for their time and contributions as per Guidelines from the AbSPORU Patient Partner Appreciation Guidelines (here). This is an online opportunity so there are no parking, travel, or other related expenses anticipated.

For more information or to express interest
Email: isabelle.malhame@mcgill.ca