Opportunities - Parents Empowering Neurodiverse Kids: Strongest Families Neurodevelopmental Study

Parents Empowering Neurodiverse Kids: Strongest Families Neurodevelopmental Study

IWK Health Centre and McGill University

 

Project Background

Children with brain-based developmental disorders often face emotional and behavioural difficulties. These challenges can negatively impact their quality of life and the quality of life of their families. Drs. Patrick McGrath (Centre for Research in Family Health) and Lucy Lach (McGill University) are working together as part of the CHILD BRIGHT Network (see link here) to create an online parenting program to improve the lives of children with neurodevelopmental disorders and their families. These disabilities include: Autism, Cerebral Palsy, Down Syndrome, severe learning disability, Epilepsy, Global Developmental Delay, or any other diagnosis that affects how a child gets around, communicates their ideas, processes what they hear, or remembers things.

The Strongest Families Neurodevelopmental Program “Parents Empowering Neurodiverse Kids” has been developed to deliver evidence-based care to families in the comfort of their homes. The program includes 11 skill-based education sessions, weekly telephone support from trained coaches, video/audio skill demonstrations, and a Parent-to-Parent online support group. Parents of children with neurodevelopmental challenges were involved as expert advisors in all phases of the project development to ensure the content is relevant to all families.

We are looking for parent participants to test two versions of the program (Coached and Self-Managed) in a Canada-wide randomized trial.

 

For more information on the study visit: www.crfh.ca/neuro

To apply to the study visit: https://mystudies.ca/

 

With your support we can improve the lives of children with neurodevelopmental challenges and their families!

 

Roles and Responsibilities

This opportunity is looking for parent participants of children ages 3-14 years old who have been diagnosed with a neurodevelopmental disability, and who also face behavioural challenges.

Participants must live in Canada to take part in this study and have regular access to a telephone and high-speed internet. The study language is English only.

 

Time Commitment

The study period is 10 months and involves completing 3 online study questionnaires (approximately 1 hour each) and 3 telephone interviews (approximately 20 minutes) over the course of the study.

Parents assigned to the Coached Version of the study will require 3 hours per week time commitment - 2 hours per week for online reading materials/practicing skills and 1 hour per week for group telephone coaching.

Parents assigned to the Self-Managed Version will not have coaching calls. This version requires 2 hours per week online reading materials/practicing skills only.

 

Reimbursement/Compensation

Study participation is voluntary.

Access to program materials will be provided free of charge.

Compensation is provided for completion of the questionnaires associated with the study. There are 3 questionnaires to be completed and each completed questionnaire will be compensated at a rate of $50.

 

Contact Information

Interested in participating? Please connect with:

 

Karen Turner

sf.neuro.study@iwk.nshealth.ca

karen.turner@iwk.nshealth.ca

1.877.341.8309 (ext 1, then1)