Opportunities - The patient’s perspective: evaluating the meaningfulness, comprehensiveness, and prioritization of common Patient-Reported Outcomes (PRO) in cardiac surgery
The patient’s perspective: evaluating the meaningfulness, comprehensiveness, and prioritization of common Patient-Reported Outcomes (PRO) in cardiac surgery
Libin Cardiovascular Institute
When patients have heart surgery, hospitals and doctors collect information that helps tell us how well the surgery and patient recovery, went. Recently, there has been more emphasis placed on outcomes that reflect the surgical experience and quality of recovery from the patient perspective. One way to do this is using Patient-Reported Outcomes (PRO).
There are many available questionnaires/tools to collect PROs. Most are made up of questions and scores which then give a total score reflecting the quality of care and recovery. Most of the PRO tools have not been evaluated by patients to help understand what matters most to them, what pieces are missing, how well hospitals and doctors measure PROs now, and how good (or bad) of a job we are currently doing. This project involves bringing together patients and healthcare providers to review the existing PRO tools and help determine which ones do the best job of measuring what matters most to patients. The results of this would then be used to guide the development and future use of PRO tools that better reflect the priorities of patients having heart surgery.
Roles and Responsibilities
We are seeking patient partners with lived experience of cardiovascular disease (CVD) who can join as a member of our core committee to advise on the project, objectives, timelines, and outcomes. For instance, core committee members will help plan the design of the focus groups and members will be invited to co-facilitate focus groups with patient participants who have had heart surgery.
This project is anticipated to start September 2021 and continue until September 2022.
Patient partners are expected to contribute to monthly meetings of 2 hours/month for 1 year. Meetings will be both on-line and in-person in Calgary.
There will be additional opportunities to contribute for those interested and available.
Compensation will be offered as per AbSPORU guidelines at a rate of $25/hour.
Reimbursement will be available for travel/parking costs associated with in-person meeting attendance.
For more information or to apply please connect with:
Sadia Ahmed firstname.lastname@example.org