Opportunities - e-PROMS to IMPROVE CV Care

e-PROMS to IMPROVE CV Care

 An Electronic System for Individualized Monitoring of Patient Reported Outcomes for Value and Effectiveness in Cardiovascular (IMPROVE CV) Care : User-Centered Development and Formative Usability Testing

(University of Calgary)

Background

Person-centered care is fundamental to high-quality health systems.  It improves experiences people have with care, better aligns health services delivery with individual needs, reduces inappropriate use of services influencing the cost of care, improves health outcomes and fosters greater satisfaction of the professionals who provide care. This is achieved by integrating clinical data with objectively collected Patient Reported Outcomes Measures (PROMs) and Patient Reported Experience Measures (PREMs).

Unfortunately, these subjective  aspects of a person’s health status and experience of care are still generally collected through telephone and paper-based surveys and aggregate results  made available after considerable delay. Recent advances in PROMs and PREMs collection have focused on electronic formats for administration because this can be much easier to implement into routine clinical care.

Cardiovascular disease is a leading cause of morbidity, mortality and healthcare expenditures.  Although there are well developed and validated PROMs and PREMs for cardiovascular disease, there is a lack of electronic tools for collecting and reporting these measures back to care providers and patients . This represents a missed opportunity for patients and care providers in improving quality and outcomes of care.

Specifically the objectives of this study are to develop an electronic platform for measurement and reporting of patient reported outcome measures (e-PROM) for cardiovascular care, and to conduct a formative usability evaluation of the e-PROM platform with end-users (care-providers).

 

Roles and Responsibilities

A central focus of this project is the integration of diverse patient voices.

This study is looking for 15 patient partners living with heart disease, and from Southern Alberta, to provide input and insight into the development and testing of the e-PROM platform through virtual meetings and focus groups.

Patient partners can engage in any or all of the following ways:

  • provide feedback and evaluate the appropriateness and content of training materials for PROMs and PREMs as they relate to cardiovascular disease and the e-PROM tool;
  • training patient advisors on the use of the e-PROM tool including the development of the e-PROM tool user guide document;
  • contribute in the virtual formative usability testing session to be led by the Ward of the 21st Century team; and
  • join as a member of the University of Calgary Libin Cardiovascular Institute of Alberta (LCIA) Patient Advisory Committee.

 

All training and support will be provided including to facilitate internet and technological access, if requested.

 

Time Commitment

This project is anticipated to start December 2020 and continue until Spring 2021.

Due to Covid-19 restrictions, all training and meetings with patient partners will be conducted virtually.

Meeting times will  vary from 1-3 hours.

 

Reimbursement/Compensation

At this time, there is no travel anticipated. All meetings and focus groups will be held virtually.

Compensation will be offered to all patient partners at a rate of $25/hour as per AbSPORU guidelines.

 

For more information or to apply please connect with


Sandra Zelinsky

Lead Patient Research Partner, AbSPORU Patient Engagement Platform

Email: sandra.zelinsky@ucalgary.ca

Phone/Text: 250.706.8654

 

This study has been approved by the University of Calgary Conjoint Health Research Ethics Board.

Ethics ID:REB20-1907