Opportunities - EMPATHY Trial - Chronic Kidney Disease

Background:

University of Alberta, Can-SOLVE Chronic Kidney Disease (CKD)

The EMPATHY trial will determine the effects of routinely measuring patient-reported outcome measures (PROMs) on the experiences of patients undergoing hemodialysis in Alberta. PROMs are questionnaires that ask individuals to report on certain aspects of their health. In this study, the following two questionnaires will be used:

  • The Edmonton Symptom Assessment System Revised - renal (ESAS-r: Renal): This questionnaire focuses on health symptoms related to chronic kidney disease

  • The 5 level EuroQol 5 Dimensions Questionnaire (EQ-5D-5L): This questionnaire focuses on general health

In both cases, patients identifying problems on these measures will be linked to treatment aids for clinicians, providing specific information on how symptoms can best be managed. The primary outcome this study will examine is patient-clinician communication. In addition to assessing the effect of using these questionnaires on patient-provider communication, this study will explore whether their use affects patient management and symptoms, use of healthcare services, and the overall cost of implementing these questionnaires in clinical practice.

Invitation:

We are inviting you to join our research team because of your lived experience with chronic kidney disease (CKD) and dialysis. This research aims to improve patient-provider communication and symptom management of CKD patients on dialysis. Your experience will help ensure that the EMPATHY trial is designed and executed to achieve our study aims.

Patient requirements:

The team is looking for Canadian patients on hemodialysis, having been on dialysis in the past, or family members of patients on hemodialysis.

Timeline:

  • The EMPATHY Trial is a 4-5 year initiative. We are currently in year 3.

Patient partners are not obligated to commit to the entire duration of the study. Any amount of contribution would be accepted.

Role and Expectations:

  • Patient partners will mostly be involved in producing knowledge translation products for the study.
  • Patient partners will occasionally be asked to participate in teleconference meetings, review study documents, respond to surveys, and provide feedback.

Research team member(s) contact information:
If you are interested or would like more information, please contact Hilary Short, Research Coordinator for the EMPATHY trial:
Email: heshort@ualberta.ca
Phone: 780-492-5233