Opportunities - Understanding the Pediatric Patient Perspective on Neurostimulation for Migraine Treatment

Understanding the Pediatric Patient Perspective on Neurostimulation for Migraine Treatment
Stollery Children’s Hospital, University of Alberta

Background
Migraine is defined as a headache occurring 15 or more days per month for more than 3 months. Migraine affects 1 in 10 children and adolescents, causing troublesome and debilitating symptoms, including severe head pain, vomiting, and light and sound sensitivity. Unfortunately, chronic migraine is difficult to manage, often involving medications, behavioural strategies, and sometimes injection therapy. This may mean frequent travel and time off work for families to attend numerous medical appointments. Developing alternative methods for migraine treatment may be advantageous to improving pain outcomes, minimizing disability, and improving access to health care.

One such alternative therapy is Cefaly®, a wearable device that provides electrical impulses to nerves in the forehead involved in headache generation. Cefaly® is government-approved in adult populations and found to significantly reduce pain during migraine attacks. Our research team is interested in developing migraine treatments that align with patients’ preferences and needs. Part of this goal is understanding pediatric patients’ perspectives regarding neurostimulation for migraine treatment, and we need your help!

We are inviting youth ages 12-21 that live in Alberta to participate in focus groups and to share their perspectives, insights and experiences of chronic migraine. We are looking for patient partners with lived experience of chronic migraine to co-facilitate these focus groups and help promote peer-to-peer discussion amongst participants. All focus groups will be conducted via Zoom so there is no travel required. Training and support will be provided. This is a great opportunity to develop your leadership skills and contribute to medical research that can improve the lives of pediatric patients and their families living with chronic migraine.

Roles and Responsibilities
Patient partners are expected to attend a virtual meeting prior to the focus group share their patient perspective insights and feedback on the focus group format, and for training. Patient partners are expected to take an active patient liaison role in the virtual focus groups and to help facilitate and promote group discussion.

There may be additional opportunities for patient partner collaboration as the project progresses, for patient partners interested and available.

Time Commitment
This project is planned to take place from July – September 2022. The total time commitment for patient partners is anticipated to be 2-3 hours, although we are very flexible and can work around your schedule. Thank you in advance for your consideration, we can’t do it without you!

Reimbursement/Compensation
Patient partners will be offered compensation in the form of $25 pre-paid gift cards for each hour collaborating on this project. We are also open to letters of recommendation for patient partner leadership role, confirmation of volunteer hours and other forms of recognition and appreciation for this essential role.

For more information or to apply, please connect with
Dr. Thilinie Rajapakse                                                 Julia Craig
thilinie@ualberta.ca                                                    jacraig@ualberta.ca
780.248.5630                                                              403.922.1283