Opportunities - Managing Incontinence - A Community-Based Participatory Research (CBPR) Approach

Managing Incontinence – A Community-based participatory research (CBPR) approach

University of Alberta

 

Background

About half of the people over the age of 65 and living at home experience urinary incontinence. Most older adults fail to consult healthcare professionals regarding this condition due to embarrassment or lack of knowledge about treatment and management strategies. We want to end this stigma by starting a conversation about urinary incontinence and involving older adults with experience of this condition to be part of our research team this summer. Our goal is to develop a priority list of questions/concerns that could be applied to future research and improve the management of this condition. We also hope our findings will be used to better educate the family members and healthcare providers of older adults who are experiencing urinary incontinence.

This is an opportunity to share your perspective on urinary incontinence and what it is like managing this on a day-to-day basis. You will be part of our research team, partnering in several stages of the research process.

 

Roles and Responsibilities

Patient partners will be asked to attend 5 meetings at the University of Alberta to discuss and share their perspectives and experiences with urinary incontinence.  Meetings will involve discussion on research priorities, participant recruitment, interpretation of survey results (there will be 2 rounds of surveys) and writing and co-presenting conclusions for those interested in doing so.

In-person participation is preferred and mandatory for Meeting 1 and Meeting 2.  If necessary, there will be an option to teleconference or video-connect for the following meetings.

 

Time Commitment

Meetings will be held between June and August 2019 at the University of Alberta, Edmonton. Total time commitment will be about 13 hours. See below.

 

Meeting 1

Introductions, ethics and focus group discussion.

About 5 hours

Meeting 2

Establish a list of questions and concerns about urinary incontinence.

About 3 ½ hours

Meeting 3

Discuss and approve finalized draft of priority determining survey to be sent to large population.

About 1 hour

Meeting 4

Interpret results from 1st survey round.

About 1 ½ hours

Meeting 5

Interpret results from 2nd survey round and come to agreement on finalized list of questions/concerns.

About 2 hours

 

Reimbursement/Compensation

Parking fees for meetings will be reimbursed.

Refreshments/lunch will be provided at each meeting.

You will also receive a $20 gift certificate at the conclusion of the study as a thank-you from the rest of the team.

 

Contact Information

Interested in sharing your experiences with us? Please connect with

 

Marina Kirillovich

kirillov@ualberta.ca

780.974.5535