Opportunities - Promoting shared decision making for people with chronic kidney disease

Promoting shared decision making for people with chronic kidney disease

University of Calgary

 

Background

Many people with advanced chronic kidney disease (CKD) or kidney failure have a poor quality of life and a high risk of dying. Some people require dialysis when they are diagnosed with kidney failure, while others have time to decide whether and how they would wish to have treatment for kidney failure.  These are difficult decisions and accurate information about the chances of survival would help people make choices that reflect what they prefer and value. Patients and their healthcare teams may use calculators called prediction tools to identify the risk of important health events. Unfortunately, there is lack of appropriate prediction tools to help people decide how to treat kidney failure and its complications.

The purpose of this research study is to create tools that accurately predict the chances of survival with kidney failure for individual patients. We would like to hear more about patient perspectives about how to build a tool that accurately calculates the prognosis for survival for a person with advanced CKD.

 

Roles and Responsibilities

We are looking for patient partners with lived experience of advanced chronic kidney disease. Patient partners will be invited to contribute to the project depending on their interests and availability including attending monthly project meetings and reviewing project documents.

 

Time Commitment

This study is ongoing until mid 2026. Patient partners will contribute to monthly meetings, either virtually or in-person according to their preference, and provide feedback on study design and project documents.

 

Compensation/Reimbursement

An honorarium will be offered as per AbSPORU guidelines. This will include compensation for time preparing for meetings, attending meetings, and reviewing any project documents. Any out-of-pocket expenses related to the research project (such as parking, etc.) will be reimbursed.

 

For more information please contact

Niamh Caffrey (Research Coordinator)

Niamh.caffrey@ucalgary.ca

403.220.8174

            Or

Ping Liu (Principal Investigator)

ping.liu1@ucalgary.ca