Opportunities - Patient Partner on Advisory Board: Successful Anti-Epileptic Drug (AED) selection and genetic influences

Patient Partner on Advisory Board: Successful Anti-Epileptic Drug (AED) selection and genetic influences
University of Calgary, Department of Clinical Neurosciences

Project Background
Epilepsy is one of the most frequent chronic neurological disorders with a major impact on quality of life. It is treated with anti-seizure or anti-epileptic drugs (AED) with the aim to stop seizures from occurring. Although many anti-seizure drugs are available, we are currently unable to predict which drug works best in a particular patient. This leads to selecting drugs based on trial and error, which results in less than 50% of patients becoming seizure-free with the first drug.

Through this project, we want to figure out how to predict which Anti-Epileptic Drug (AED) has the highest likelihood of success for a particular patient - we want to personalize medicine. Two of the strategies to do this include looking at the genetics of a person to see if there are any genetic influences on the success of an AED, and then running a "big data analysis" to look at different treatment effects. We then will develop tools to help doctors and patients predict the effect of different AEDs and select the best one.

This project is a 3-year international collaboration with Belgium, Canada, Finland, and Germany. As part of this project, we are developing an Advisory Board, where we are hoping to engage patient partners from each of these countries to help inform and direct the research and dissemination process.

Roles and Responsibilities
We are looking for a patient partner from Alberta who has an experience with Epilepsy to join the Advisory Board. Your input will help inform and direct the research and dissemination process of this project. Because this is an international project, there will also be patient partners from Belgium, France and Germany. 

As a patient partner on the Advisory Board, some commitments will include:

  • Attending annual project meetings
  • Provide advice and consultation on the best way to translate research results into clinical practice
  • Provide suggestions and input about ongoing Internet and social media awareness campaigns

Time Commitment
This project is a 3-year international project starting on July 1, 2019. 

Reimbursement/Compensation
Compensation and Reimbursement can be discussed.

Project Team Contact Information
Interested in getting involved or want more information? Connect with the project contact person: 
Karl Klein
karl.klein@ucalgary.ca
403-944-1762

 

Thank-you for taking the time to consider this opportunity. If you know someone you think would be interested, please pass this posting along!